Underwater treadmill at Western PA Sports Medicine Somerset PA |
One of my doctors once told me that I am unusually aware of what’s
going on inside my body. I choose to
take that as a compliment. What I have
become especially aware of lately is the endorphin release. Oh, how I love the feeling: it’s like something
inside me pops and releases a warm flow of wellbeing.
This is a relatively new experience for me. Those of you who know me know that I have,
among other conditions, Sjogren’s syndrome with fibromyalgia. My immune system seeks to destroy all
moisture producing glands in my body, my muscles and lungs typically feel like
leather; fibromyalgia means that I am in constant pain.
For many years, I lived my illnesses. Everything was about being sick. If I wanted to do something special, like run
two sixty second agility courses, I had to plan to do nothing for days before
the trial so that I could conserve what little energy I had. I also had to plan to do nothing for close to
a week afterwards, as I would pay for those 120 seconds with approximately that
many hours of debilitating pain.
If you know my maiden name, you know that it is synonymous with stubbornness. My stubbornness
is tempered with optimism and it has served me well. My family doctor is wonderful but it took
visits to two rheumatologists, two ophthalmologists, three gynecologists, four
neurologists, and every physical therapist in Somerset to build the medical
team that works best for me.
God bless the rheumatologist that prescribed aquatic physical therapy
and God bless the therapist and staff that recognize and treat the “compounded
medical difficulties” that make me me. I
started walking at 0.5 mph for eight minutes and gradually – extremely gradually
– worked my way up to a point where I could walk 30 minutes before increasing
the speed.
There was a lot of pain in those days, both physical and emotional, and
I probably cancelled as many appointments as I kept. These are good people who are more than
health care professionals, they are my friends.
With just the right balance of compassion and admonishments, they kept
me coming back until, one day, I felt the endorphins.
I remember it well. I had a
nasty headache but drug myself into the pool anyway. Somewhere after the warm water stretching and
shortly into the walking, I literally felt that particular pain fade away. My good friend, Lisa, came in to visit me
that day and, when I told her about it, she said, “I’m proud of you. That’s your endorphin release. Not many fibromyalgia patients can stick it
out long enough to get to that point.”
When I teach people about training their dogs, I use positive
reinforcement. It works on dogs and it
also works on me. If I haven’t told you
before, thank you Lisa. That moment and those words have fueled the success I
have today.
Four years ago, I set an extremely long term goal of being able to walk
five miles. My daughter has promised to
celebrate my 50th year with a trip to the Galapagos islands, with
the stipulation that I be able to walk that distance.
Though I have a few years before I hit that age milestone, this summer
I met that goal and I am now walking that distance several times a week in addition
to my aquatic workouts. When I shared
this victory with my physical therapist/friend/hero/life coach, Steve, he gave
me another prescription: live!
That advice has been taken to heart and, now I no longer live my
illnesses, I live with them – emphasis on live. I walk, I play, I laugh, and I write, I love,
I live. All of these release endorphins,
that beautiful, magical hormone that relieves pain – physical and emotional.
Over the past six months, I’ve been able to reduce my pain medications
by more than half and have eliminated two prescriptions entirely. I sleep without chemical assistance and
handle most anxiety with a laugh. Sugar
has been virtually eliminated from my diet and I am now able to control my
hypoglycemia with grains and proteins instead of Mt Dew. Yes, I still have the aforementioned “compounded
medical difficulties” and I am still in perpetual pain but it is finally a pain
I can live with.
Thank you to all who have helped me along the way by making me laugh,
taking me out to play, reading my musings and poetry, accepting my copious
written communications, and allowing me to love you. You know who you are.
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